You know when you watch a movie or show and the person is receiving bad news…1 of two things happens….1. the phone slips out of their hand and bounces to the floor in slow motion or 2. They can’t hear anything after the initial shock of whatever it was they were told.
It’s true.
When I received the phone call that Sophie had direct admit orders to the hospital and they wanted for us to pack for a long stay… everything went into slow motion. I immediately tried to think of questions but when his answer was it was best to come in. I shut down. I started crying, really really crying. I could hardly breathe. I kept dry heaving. I told PJ as much as I could. My Mom & Sarah came over, Sarah stayed with Phillip & Hannah and my Mom, PJ, Sophie and I went up to the hospital and my Dad met us there.
Rewinding a little bit to Monday. We drove to UofM for Sophia’s GI appointment. We saw the nurse practitioner and she basically told us that she was fine and her family doctor could take care of everything.
Tuesday evening we received a phone call that they had an opening with Sparrow GI and asked if we wanted it. After much debate we decided a 2nd opinion (4th counting family doctors) couldn’t hurt.
Wednesday afternoon at 2pm we arrived for her appointment. Within minutes of the doctor walking into the room he started spewing things like webbed intestine, neurological symptoms and surgery. He ordered LOTS of blood work, Upper GI and head CT for tumor and/or brain malformation. We did the blood work and were just waiting for insurance authorization for the other 2 tests. I left there in a slump, not knowing what was really going on. My heart hurt and I was angry that it took this long to listen. I was scared.
We got home about 4pm and got settled in. My Mom was watching Phillip & Hannah while we went to the GI doctor. She took Phillip home with her. It wasn’t a half hour later and the GI doctors number shown on my phone. I answered it and that’s when he said something was wrong.
It is still fuzzy. I was terrified, my stomach felt like it had fallen to my toes. He started talking about sepsis, metabolic disorders and that’s when he told us to head straight to the hospital.
When we got here there was a team waiting.
We don’t have many answers yet. As I write this she just getting done having her Upper GI. She had her head ct which came back normal, blood work showed infection so they started her on antibiotics, xray of her abdomen (still not sure what they said about that) and still have more scheduled.
I keep praying. That’s all I do every second. I am feeling lost, scared and hopeless. I finally figured it out though, why PJ (or I) haven’t gotten a job, we were supposed to be here for this. I am just angry that it took this long for someone to listen.
Keep praying for my baby girl. Pray for my other 2, who don’t understand. Pray for strength for PJ and I. Pray for guidance of the doctors to do the right tests to find out what’s wrong. Just pray.
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