Lets start with the kiddos: oldest to youngest works easiest.
Phillip: A couple weekends ago he went to spend the weekend with Grandpa. I awoke shortly after midnight (because we have an amazing guard dog....) to my father in law and son staring at me. I jumped up and thought that maybe just maybe he missed me. No, such luck. He was having a blast, wrestling with Grandpa and ended up busting his head open. We sleepily headed to the hospital and got him all fixed. He was a trooper. 7 days later he got them removed.
He spent 3 or 4 nights over at Grandpa's and when he came home, he didn't act like that is where he wanted to be. I have struggled to extend extra patience because we all know I lack patience in the first place! To show you an example of what's been happening: currently Phillip & Hannah are loudly fighting over a king size blanket! I have to admit that hands and feet are flailing as they hope to cause pain to each other. Where have my children gone? On a brighter note we have realized that his schoolwork is boring him. It's just too easy. He is getting through all his schoolwork in a matter of 45 minutes. Realizing this is a great thing, we can now work to get to a point where it challenges him more. He has a heart of gold though, he will protect his sisters when he thinks anything will harm them. He is an amazing older brother. I just think he is trying to grow up too quick.
Hannah: Ya know that her nickname is Hurricane Hannah? Little did I know that this was chosen felicitously. She is fitting into her roll as middle child quite well. I feel like sometimes she gets lost in the middle of homeschooling and Sophia's medical stuff. She is growing up so quick. She is learning and wants the patience to sit and do schoolwork with her big brother. She yearns for the knowledge to do his schoolwork and not hers.
It's a journey with her. I see a lot of myself in her, and sometimes I am not sure exactly how to deal with that because a lot of the things are still in desperate need to be worked through with me...I mentioned my lack of patience right??? She is the daredevil, a bundle of endless energy and it is exhausting. But at the end of the day when she curls up and goes to sleep, all the frustration that has built up in her (and in me!) dissipates and all that's left is my beautiful princess with long curly hair sleeping peacefully.
Sophia: A family friend, Christine, said that Sophia is singing the 'anything you can do I can do better' song to my sister Emily. It suits because of all the medical problems Emily had growing up and Sophia has met the bet and raised her 20. We went to the immunologist this past week and we got a few things thrown at us: For now the diagnosis is Transient hypogammaglobulinemia of infancy (THI). It's not nearly as scary as it seems. It boils down to 'in the 3rd trimester the baby receives it's immune system from it's mother. When the baby is born he/she gets an even better immune system if he/she is breastfed. At 6 months of age the immune system it receives from his/her mother dissipates and their own immune system start kicking in. With THI the baby is unable to kick start the immune system and it takes up to age 6 to normalize. In the mean time the baby is more susceptible to sickness and the severity of the illness depends on the state of the immune system' He did a variety of other labs to determine where her immune deficiency is and if he can pinpoint more info for him and us. He didn't like one other lab and is testing her for something with white blood cells. He scared us when he asked us to find out if we had a history of cancer in our family and what kind.
Today we see the best otolaryngologist there is. Seriously he is amazing. Because of reflux and ear infections Sophia needs to be evaluated for tonsils/adenoid surgery and tubes in her ears.
OTHERWISE she is meeting her milestones and is doing pretty well. She is still eating only Neocate formula and Neocate Nutra 'cereal'. But we are able to start reintroducing 1 food at a time. I am excited because she desperately wants to eat what we eat and keeps looking at her bottle as if to say "this is all I get???"
The past week we, well except myself but I am sure it is coming, have been sick. The miserable, laying on the couch not moving, not eating, and whining sick.
I think I have lost touch with exactly what I wanted to post, but that is how life has been lately. It is one sidetrack after another. The t.v. has been on more than usual, the kids have been bickering and consequently I have been hollering, schoolwork and chores are lacking. Emotions have been running high.
We just have to continually remind ourselves that it's hard but not impossible; it is one of those times where God is carrying us. It is definitely easier to find God in the light places than in the dark.
We need to search for God in the chaos and not just in the peaceful quiet.
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